Candy crushed

Beth had been quietly staring her iPad down for the last couple of weeks. I learned she was playing candy crush. Having heard and seen how addictive it is, I avoided it. Until last night. I now find myself in the chair infusion trotting in, playing the fucking thing! Wouldn't have been so bad if I hadn't stayed up all  last night playing it.

Tysabri Day

Today is in fusion day. spent a stressful hour covering bills. The most stressful part of dealing with paying medical bills, once I've got past the WTF! element is the voice telling me over and over how important my call is, whilst telling me there is a wait as they are dealing with everyone else. Once through, the accounts people are always alright, probably because I haven't phoned to shout at them. So, infusion ahoy!

Slide

Today is the day before my monthly infusion. Every time an infusion is coming up I know as my body begins to collapse a little. This month I forgot when the infusion was due and thought the wipe out was coming from nowhere. Now that I've remembered, its crap, but the panic button is off.

Circleville.

Back in the house having been to pumpkin festival that you would have to see to believe. Huge 1,000 pound plus pumpkins, parades and every type of food a la pumpkin you can imagine. Think of the small town you grew up in converting itself into the pumpkin park of delights for a week. A Ferris wheel whirring in the cold with one lone traveller, caring not for imminent frost burn. Hoards of people dressed for summer weather, not even tutting as I pulled my wax jacket closed and put a cap on. Its really something to see, though leave before midnight. That's when the giant pumpkins get peckish.....

Cream Puff Apocalypse.

Beth and I went for dinner with her mum and dad. We went to Schmidts, a really good German restaurant around the corner from her house. Food was great but very filling. We drank a lot of beer. Food finished, now quite pissed, the question came in, "Did you save room for a cream puff?" Anyone who has ever seen the size of the cream puff they serve knows the answer has to be, "no thank you...." Beer had other ideas. Having inhaled the peanut butter version I am now sitting thinking "Blimey, you would have thought I'd of learned my lesson last time." Nope.

Oh yeah....

An early breakfast with my mate Joe. I actually asked for the healthiest thing they had, which was an egg white omelet with spinach and peppers. This was a smart move. What wasn't was ordering coffee. I don't drink coffee much now and I just remembered why. What was worse was taking up the offer of more coffee to take away. Hours later I am still running on a buzz that isn't show much interest in leaving.Oh.

Anniversary day

Today Beth and I have been married eleven years. Been together about 14. I don't make a lot of smart moves, marrying her was the best I've ever made. Love you babe xx

Aftermath

Today is, I isn't. I know I fed Abbey at 6am, put on a load of coffee and passed out on the couch. A quick scan showed me no major disaster had occured. I came back from the Casino with everything I went with, outside of the huge amount of money I drunkenly expected to win.. Hollywood casino my arse.

Pixies - Wave of Mutilation (Live Electric 2005) [HD]

Casino

John and Kate came into town around 9:30 or so. Down to Thurmans around 11. Ate and drank quite a bit.. Did I mention I was trashed before we got there? Chatted to Kevin, who actually recommended the Racino at Scioto Downs as we were clearly too trashed to go to the Hollywood Casino. Columbus does have a twenty four hour casino called the Hollywood Casino. Bless. Staggered into that with no check on age as I was looking well old and drunk. It may have been that it was 1:30am and most children and sensible people would be in bed.
How was the casino? Carpets from a lost age, machines everywhere, which paid out ok, so it was alright actually.  We all got home, result, then realised dawn was not that far off. Today will be slow but pick up pace. I don't know when.

Shit!

The last time I wrote anything was July 26th. This was ages ago. I could tell you I was going through try neuralgic nerve pain until early September, which I actually called try-veginal nerve pain much to the amusement of my doctors. Doctors. Bless 'em thats all I seem to have done, apart from dealing with health insurance vultures.
so, a year or two when my MS decided to assert itself in the primary. July thru October. As dates go, crap. I finally looked on Google plus which had changed, not a myspace swan dive, more of a desperate shuffle to bring in the kids. Bless. Right, health crap, brain re-engaged. If I can't walk I may as well sit and write about something or other. I can walk though it is a bit shite.
 I've done more than I'm giving myself credit for. Last thing Radiolab, which was great, parties, a holiday that I think was really nice, though I was in a drug induced haze and remember little about it.  Lots of lunches and dinners and following the no alcohol space drugs for the nerve pain,  some drinking.
When a life long illness decides to take you out for a bit, it doesn't mean a nice stroll in the park. This is the point where I have to decide if being ill is enough. It isn't. Tried focusing on that, boring and dangerous. I don't know whats coming next, I think it'll be fun.