Tuesday, August 16, 2016

Day starts

Today is starting as all of my days have started for the past month. I wake up by 5am and put on some coffee , of which I will drink a cup and a half. I'll eat a banana and a granola bar, and drink some water. I then get myself ready and walk out of my front door as the day breaks, it's best if I wait until light is beginning to come up. I've gone out earlier, and realised that the hour between the end of night and the beginning of the new day is interesting, but best avoided, 
I then go out on the road and try and  walk until I've hit two miles. I then go into the park and try to get upto 4 miles. Then I come home looking like I've been in a bath. Drink some more coffee, have a shower, day starts. I've tried the other way, drink coffee, eat biscuits, swear at the news, and sulk my way into the day, This new way is more difficult, but it makes the rest of the day a lot more fun,

Tuesday, August 9, 2016

What is that?

Outside of my infusion day, I've been starting every day by walking at least two and a half miles, I walked a mile over the day when I had the infusion. Today I noticed something I wasn't expecting. I think I'm feeling a little bit healthier. I thought I was supposed to feel entirely shitty, all the time. Hmm.... What shall I do with that?

Thursday, August 4, 2016

Test.

I knew when I decided to wake up and go walking every morning that there would come a day where I thought "Fuck this!" That morning was this morning. I hoofed out of the door at 545 in order to beat the earth burning. I hadn't calculated the humidity, which was brutal. I hadn't fully accounted for how urban a walk I was taking, and got to meet a nice bloke, who did his spiel, and then tried to hit me up for some cash. I wasn't carrying any, so he wandered off. I saw the nice police cyclist again, who now wished me a cheery good morning, and took me off of his potential early morning criminal list. It was going great.
Then I hit mile 2 and I felt every step of it until I got home. This is the point where you can say "fuck that!" However, this time I have decided that I'll go with it. 2 and a half miles in killer humidity, I  came home looking like id been in the bath. So today is indeed  a fuck it day. I've decided fuck it, I'm going to do it anyway.

Wednesday, August 3, 2016

Dawn parade

This morning I woke up really early. I figured that I better get a walk in before the earth burns. I went out of my front door, it was  still dark. My plan to go straight to the park adjusted. In my mind there are people currently leaving that park who been around all night. Bullshit! I thought and wandered down the road under the lights.
I got to the back of Schiller park and thought,
"Sod it, I'll go through anyway!"
This was going great until I saw a figure standing under a tree in the distance. Dawn was beginning to break, but it was still a little spooky. The figures head was staring down, he wasn't moving at all.
"Bollocks!" I thought and walked on. I looked again, still no movement. I was getting closer. He flinched, and waved his hand. Pokemon Go......
I wandered on, sat on a bench, said good morning to the nice police cyclist, who wasn't really sure what I was doing there, and then came home.
The day is now starting to heat up, and tomorrow is going to be worse. Early morning urban walking again, maybe he'll catch the Pokemon this time.

Tuesday, August 2, 2016

Sea change

I've been back from England for a couple of days. I landed three weeks ago, and then bounced around, until we flew back on Sunday. We flew not knowing if our flight would be pulled when we got to Newark, every weather report hinted that it would. Other people had already rebooked their flights for the following day, so that if we got stuck, we couldn't get out of Newark for at least 2 days. It does make flying in a lot more exciting.
We got delayed a bit, ordered food using the iPad thingy they now have set up, like Blade Runner, but a lot more shit, and expensive enough to bring a tear to your eye. Apparently the chicken sandwich is made of gold.
Fantastic time at my mum and dads houses. Don't drink Bombadier....don't ask. Amazing wedding of two of my best friends, Becky and Reid. You don't see a day of such pure joy that often, I feel privileged to have been there.
The sea change is that I decided to wake up early and walk everyday. Today I was out really early as this day and those following this week, are going to fry.
I spent years believing that the MS meant that I couldn't really walk. Turns out that I was wrong. 2 miles a day, not bad.

Saturday, June 25, 2016

Re-repair.


My happiness with finding all my old tunes on my old computer became somewhat dulled when it fell on its arse and refused to come out to play. I spent the next couple of weeks lamenting the loss of all those tunes I had found again, and moved over to streaming Radio 6. However, last night something struck me. I cannot quite remember exactly what tmy inspiration was, but whatever I did, means that I'm now sitting happily typing very badly, listening to all my old tunes, on the newly resurrected Itune sound bank. Am I a computer genius? Am I fuck. Cool tunes though....

Sunday, June 12, 2016

Kill or Cure.

There are often reports that MS can be cured. Usually once I check into them, they turn out to be bollocks, pitched by a snake oil salesman, or by a deluded well-meaning sort, who,
" Really has got a hold of this beast!" Bless.
This is why I don't ever get my hopes up. However, the clinic trial in Canada does look very interesting. All the reports I've read about it say the same thing. If it works its amazing, if not, it can kill you. Its an ultra aggressive course of chemo therapy, where your immune system is destroyed, and then replaced with one built from your blood which hasn't yet been affected with MS. One person has died doing it. The infusion regime I do once a month has killed a lot more people than that. The fact that they admit just how dangerous it is, makes me think that this really might work.
Its like a greasy spoon thats been shut down a few times. So what if they got caught out, you know that it will taste great, and you can't fault them for effort. Does this mean that I'm now taking the top bacon sandwich approach to health? Well, I've tried everything else.