Friday, November 22, 2013

Glide.

I'm up. Doesn't really count as I haven't slept, more of a glide in to the day. This happens every now and again MS will not let me sleep, with a side order of quiet foreboding as we go along. Sometimes its spooky, as it was when I was suffering from seeing people I knew were not there. I checked this out with my neurologists and other people with MS. Its not that unusual, but it can freak you out quite a bit. For a while years ago I thought I may have gone mad or just crossed to the dark side. Turns out its optic neuritis where your brain constructs what your eyes aren't seeing that well. I just wish they had been a little friendlier. So, last night didn't see any of that, watched the Hobbit, which i really liked and started listening to music again, something I hadn't done for months.Landed on Beth Orton, who I've always really liked, Sugaring Season is a fantastic album.
The weird thing for me is that it always seems to take a night of no sleep to get me back in gear. Jamaica was great, the tri neuralgic nerve pain cost me months and wore me out more than I thought. The cross into a potential lethal spot with my infusion freaked me out a bit, that seems to have resolved itself. Having to admit for now performing is over was something I sulked about way longer than i should have done. What next? Dunno, but it doesn't seem to be ghosts or death, Ill take that as a win.

1 comment:

Rich Stadler said...

Hello Simon,

I'm glad to be able to read your writings, even though there's nothing glad about MS.

Thank you.

- Rich Stadler