Up.

I'm up again, though no sleep makes it a movement rather than a change of state. I've had a banana, a couple of peanuts and the one coffee I will drink today. Yesterday was slow but fun as doctor Who repeated endlessly on BBC America. I know its a kid's show, for children but I'm a big kid at heart. The best thing I watched during the night was a documentary on how to fix the american health care system. Care sincere, system shite. Having been in it a lot for the past two years, its easy to edge on the shite side. America, a bankruptcy in search of an accident.
However, the documentary was about the Cleveland Clinic and how they are looking at things a lot differently. Thats the thing about living here, once you think thnigs are entirely run by a bunch of money grubbing twats who don't give a shit, the good people turn up, and make you think again. No sleep, but quite cheerful.

Glide.

I'm up. Doesn't really count as I haven't slept, more of a glide in to the day. This happens every now and again MS will not let me sleep, with a side order of quiet foreboding as we go along. Sometimes its spooky, as it was when I was suffering from seeing people I knew were not there. I checked this out with my neurologists and other people with MS. Its not that unusual, but it can freak you out quite a bit. For a while years ago I thought I may have gone mad or just crossed to the dark side. Turns out its optic neuritis where your brain constructs what your eyes aren't seeing that well. I just wish they had been a little friendlier. So, last night didn't see any of that, watched the Hobbit, which i really liked and started listening to music again, something I hadn't done for months.Landed on Beth Orton, who I've always really liked, Sugaring Season is a fantastic album.
The weird thing for me is that it always seems to take a night of no sleep to get me back in gear. Jamaica was great, the tri neuralgic nerve pain cost me months and wore me out more than I thought. The cross into a potential lethal spot with my infusion freaked me out a bit, that seems to have resolved itself. Having to admit for now performing is over was something I sulked about way longer than i should have done. What next? Dunno, but it doesn't seem to be ghosts or death, Ill take that as a win.

Candy crushed

Beth had been quietly staring her iPad down for the last couple of weeks. I learned she was playing candy crush. Having heard and seen how addictive it is, I avoided it. Until last night. I now find myself in the chair infusion trotting in, playing the fucking thing! Wouldn't have been so bad if I hadn't stayed up all  last night playing it.

Tysabri Day

Today is in fusion day. spent a stressful hour covering bills. The most stressful part of dealing with paying medical bills, once I've got past the WTF! element is the voice telling me over and over how important my call is, whilst telling me there is a wait as they are dealing with everyone else. Once through, the accounts people are always alright, probably because I haven't phoned to shout at them. So, infusion ahoy!

Slide

Today is the day before my monthly infusion. Every time an infusion is coming up I know as my body begins to collapse a little. This month I forgot when the infusion was due and thought the wipe out was coming from nowhere. Now that I've remembered, its crap, but the panic button is off.

Circleville.

Back in the house having been to pumpkin festival that you would have to see to believe. Huge 1,000 pound plus pumpkins, parades and every type of food a la pumpkin you can imagine. Think of the small town you grew up in converting itself into the pumpkin park of delights for a week. A Ferris wheel whirring in the cold with one lone traveller, caring not for imminent frost burn. Hoards of people dressed for summer weather, not even tutting as I pulled my wax jacket closed and put a cap on. Its really something to see, though leave before midnight. That's when the giant pumpkins get peckish.....

Cream Puff Apocalypse.

Beth and I went for dinner with her mum and dad. We went to Schmidts, a really good German restaurant around the corner from her house. Food was great but very filling. We drank a lot of beer. Food finished, now quite pissed, the question came in, "Did you save room for a cream puff?" Anyone who has ever seen the size of the cream puff they serve knows the answer has to be, "no thank you...." Beer had other ideas. Having inhaled the peanut butter version I am now sitting thinking "Blimey, you would have thought I'd of learned my lesson last time." Nope.